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12th NAVREF Annual Report
April 2003 – March 2004
NAVREF Mission: NAVREF’s mission is to promote high quality
management and communication among the VA-affiliated nonprofit research
and education corporations and to pursue issues at the government level
that are of interest to its members.
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Board of Directors |
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Eileen
Lennon, PhD, Chair
Executive Director, SIBCR, Seattle, WA
Bradley Olson, Secretary/Treasurer
(resigned 3/24)
Executive Director, DRI, Columbia, SC
Robert Guancial, Vice Chairman
Executive Director, BIMR, Buffalo, NY
Loretta Stillings
Executive Director, BRF, Little Rock, AR
Rita I. Young, PhD, ACOS R&D,
Charleston, SC |
William D. Montague
Medical Center Director, Cleveland, OH
Jacqueline G. Parthemore, MD
Chief of Staff, San Diego HCS, CA
Curtis Kapsner, MD
ACOS/E, BRNM, Albuquerque, NM
Thomas Stripling
Director Research, Education and
Practice Guidelines, PVA, Wash., DC |
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Elected/Appointed March
2004 |
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Mohammed Al-Ibrahim, MD
Chief of Staff, Baltimore, MD
Donna McCartney
Executive Director, PAIRE, Palo Alto, CA
Jack Nagan
Chief Executive Officer, NCIRE, San Francisco, CA |
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VA Central Office Liaisons |
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Jonathan B.
Perlin, MD, PhD (as of 12/04)
Acting Chief R&D Officer |
Stephanie
Pincus, MD
Chief Academic Affiliations Officer |
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Staff |
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| Barbara F.
West, Executive Director |
Angela
Murakami, Program Manager |
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In Appreciation |
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NAVREF’s success is highly dependent on
generous contributions of time and expertise by its members. All NAVREF
activities and accomplishments are made possible by the hard work of its
board of directors and many others who are committed to the VA-affiliated
nonprofit research and education foundations as well as the VA research
and education programs. Individuals who contributed to the activities
described below are too numerous to list. However, NAVREF wishes to
express its gratitude to all.
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Top Three
Accomplishments April 2003 – March 2004 |
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1. Achieved final passage of legislation that
provides Federal Tort Claims Act coverage for NPC employees on the same
basis as salaried VA employees. As a result, subject to certification by
the Attorney General, NPC employees with a departmental appointment
(with or without compensation) who perform VA-approved research or
education under the supervision of a VA employee are protected against
personal liability.
2. Retained retired VA attorney George Tady to
develop an updated sample clinical research agreement for studies with
pharmaceutical companies and comprehensive guidance for each clause.
Engaged members of the OGC Corporations Panel in reviewing and
concurring with the content. Coordinated presentation of these
materials, along with practical guidance on negotiating agreements and
budgeting for studies, during a well attended and highly informative
fall workshop on Best Practices in Clinical Research Agreements
conducted by Mr. Tady, members of the OGC Corporations Panel and NAVREF
members.
3. Collaborated with VA to expand board members’
understanding of their NPC responsibilities. This was accomplished by
conducting a well-attended interactive session for medical center
directors and associate directors during the VHA Senior Management
Conference and collaborating with ORD and a consultant to develop a
comprehensive manual on NPC governance that is the basis for an
eight-hour workshop being held for NPC boards across the country.
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Other Accomplishments
and Ongoing Initiatives |
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Governance
- Established the Government Affairs and Non Government Grants board
advisory committees to assist the board in identifying initiatives and
developing positions; to draw on the expertise of members beyond the
board; and to broaden involvement in NAVREF activities.
- Added two new “at large” positions to the board of directors to
increase the depth and breadth of representation on the board.
- Formed an Audit Committee and underwent NAVREF’s first audit. The
accompanying management letter contained only one recommendation. That
is, the secretary should sign the approved board meeting minutes.
- Held four board of directors meetings, each hosted by a NAVREF
member foundation to allow interaction between the host board and the
NAVREF board.
- Conducted ongoing governance training for the board that resulted in
a commitment to develop and prioritize written goals and objectives.
Advocacy
- Despite only a modest increase in the FY 2004 research
appropriation, successfully championed a $25 million earmark for
research facility improvements in the FY 2004 appropriations
legislation.
- Achieved final passage of legislation that clarifies the executive
director’s annual report ethics certification and extends the authority
to establish new NPCs through December 2008. NAVREF’s success in
fulfilling its legislative objectives was due in part to the positive
view of the NPCs and their role in supporting VA research presented by
Chairman Lennon during a hearing in April 2003 before the Health
Subcommittee of the Committee on Veterans Affairs.
- Vigorously opposed draft legislation that would have allowed VA to
provide infrastructure support only for VA-funded research. NAVREF has
worked to counter the perception that supporting extramurally funded
research detracts from funds available for veterans’ care.
- Met regularly with House and Senate Veterans Affairs Committee staff
to counter negative IG findings in reports about two NPCs and aspersions
cast on all NPCs as a result of the report on the IG’s administrative
investigation of practices by the CRADO and ORD during 2003.
Corresponded and met with VACO staff for the same purpose.
- With the theme “You don’t have to come to Washington to lobby,”
encouraged NAVREF members to work with researchers to engage legislators
in their home state and district offices. Developed sample
correspondence and conducted training during the 2004 annual conference.
Conferences
- Managed a highly successful 2004 Annual Conference that provided two
and a half days of educational sessions specifically targeted to the
needs of the NPCs as well as numerous networking opportunities.
Particularly well-received educational sessions covered such topics as
the impact of the Sarbanes-Oxley Act and increased IRS scrutiny of
nonprofits; preventing negligent hiring; and compliance with multiple
levels of local, state and federal regulations.
- Fostered NPC administration of NIH grants by surveying members and
offering several sessions during the 2004 Annual Conference to assist
them in making an informed decision about whether to assume
responsibility for NIH grants and if so, to ensure high quality
management.
- Conducted NAVREF’s first distance learning program. With 45
participants interested in learning about HIPAA, evaluations indicated
that this was a successful delivery mechanism despite some
disappointment in the content.
Administration
- Developed a business continuity plan for NAVREF. Revised portions of
the plan following implementation during the extended power outage
caused by hurricane Isabel.



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